Showing posts with label chronic. Show all posts
Showing posts with label chronic. Show all posts

Wednesday, January 6, 2010

33 YEARS !!!!


Today Tom and I have been married for 33 years, which I think is quite the accomplishment. I can't imagine not being married to him anymore and our marriage just keeps getting better. However as anyone with a chronic, unpredictable disease knows just because it is a day for celebration does not mean your body will co-operate. Today due to weather changes, extra exercise yesterday and just plain unpredictability I was feeling too sick to celebrate. This is disappointing to me and I'm sure to Tom, also. One thing about a chronic illness it interrupts and causes disappointments in my own life but also in the lives of those around me. Especially my loved ones, both family and friends, which sometimes makes me feel even worse. I have spent almost all day sleeping, if I sit down I go to sleep, which actually has been kind of nice because I've also had a horrible sinius migraine and every muscle in my body hurts. Tom however has been terrific. He made me french toast for breakfast and served it to me in bed and tonight he made homemade fried chicken strips and mashed potatoes. He is really getting to be a very good cook.
I'm just putting up a pretty picture that I like, an art edit that I did before I started writing down how I did them. It is still one of my favorite photos.

Friday, October 23, 2009

New diagnosis 2

When I first started this blog I said that I was not going to make this into a POM site where all I do is complain. That is still going to be true however no one with a chronic illness can be a constant ‘Pollyanna’ and remain honest. There are times when the frustration and sometimes even anger and other unpleasant emotions of living with constant sickness are going to get to you. No matter how good ones coping skills are, the nasty emotions that 0ne tries to hide are going to sneak up on them.
When I tell you what my new diagnosis is, your first reaction will probably be along the lines of well that’s no big deal after all it’s not life threatening like cancer or something. Well any chronic health problem is a lifetime problem; which one must cope with everyday. A couple of days ago I missed a blog because I had to stay in bed with my feet up because of swelling in my legs and feet. Well it turns out that the veins in my legs and feet are deteriorating and I will have to spend more time in bed with the old feet in the air. Just when I start to get really good at photography I have to cut back on the very things I need to do to continue it. I can’t walk around and take pics as much but that was already a problem and just needs more refining. The biggest hurdle is sitting down to edit. Does anybody out there know how to keep your feet from swelling while sitting down? If you have any tips let me know.
I’ve probably put up this picture before but to me it represents how I feel. This picture of the retaining wall was taken just after a rain. You can see the streaks going down the side. I feel like a bug that is so small it can’t be seen on the photo. That bug has just been washed out of its nice comfortable home in the woods and is scrambling to get back up to its nice safe comfortable surroundings. It’s hard and frustrating and tiring and seems never to end. Then it finds the vine and it’s so much easier to climb; it’s a relief even if its life is still harder than it was in the woods. Then it rains again and the process starts all over again. Even with the rains the bug has now found the vine and can now find relief from the constant battle of the wall. And if the bug never returns all the way back to the woods; it can make a different but still pleasant life amongst the vines.
I still have my vine, my coping skills, so I know I can still create a pleasant life for myself. Now I have put a laptop computer higher on my list of priorities. The new ones with Windows 7 have come down in price for basically the same computer I was looking at. That's a good thing. Meanwhile I am also looking at wireless keyboards and arranging my room so I can use my computer from my bed. I’m still here and I’m still coping. I love photography enough to figure out a way to keep it in my life. Maybe this will help add drawing and painting back into my life . Who know it might end up being a blessing in disguise.